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The Boy In The Moon: A Father's Journey To Understand His Extraordinary Son (2011)

by Ian Brown(Favorite Author)

3.85 of 5 Votes: 2

ISBN

0312671830 (ISBN13: 9780312671839)

languge

English

genre

Memoir & Autobiography

publisher

St. Martin's Press

review 1: Parts of this book I really enjoyed and parts I found quite tedious. I liked reading about Walker, his personality, the effect he had on his family, carers and friends, and about other children affected by this rare genetic disorder, but I got a little frustrated with the father's bellyaching about his own personal feelings and "trying to make sense of it all," and "Why me?" I felt a bit sorry for his wife who seemed to just get on with looking after their very disabled son and balancing a demanding career too.The genetic side and testing for this rare disorder was a little technical in places but certainly one comes away with learning something new and a true respect for parents who are raising and caring for very disabled children, and the daily challenges and expense th... moreey face. The father's search for his disabled son is simply the father trying to come to terms with the why,what and how of his situation. Why me and what is this genetic disorder and how can their child be treated/helped.
review 2: It took me a few chapters to become really invested in this book and the author's chronicle of his emotional journey with his severely disabled son. But on the whole I really loved the book and Ian Brown's honesty--always helps when the author is a journalist. I kept thinking while reading of a Sundance documentary we saw last year about a boy with an unrelated but equally rare genetic disorder (Progeria); it was odd timing because just as I finished the book I saw that the subject of the documentary (Life According to Sam) just recently died. All in all a lot of food for thought not just about how we handle disability and difference individually and collectively, but also about the vast unknown that is human genetics. less

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