Year My Son and I Were Born: A Story of Down Syndrome, Motherhood, and Self-Discovery

Year My Son and I Were Born: A Story of Down Syndrome, Motherhood, and Self-Discovery

Year My Son and I Were Born: A Story of Down Syndrome, Motherhood, and Self-Discovery

Year My Son and I Were Born: A Story of Down Syndrome, Motherhood, and Self-Discovery

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Overview

A brutally honest yet beautiful journey of how one mother learned to bond with her disabled son and gained a new perspective on life.

Product Details

ISBN-13: 9780762762378
Publisher: Rowman & Littlefield Publishers, Inc.
Publication date: 04/13/2010
Sold by: Barnes & Noble
Format: eBook
Pages: 336
File size: 590 KB

About the Author

Kathryn Lynard Soper is the author of Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives (Woodbine House, 2007), which has sold 12,000+ copies since publication. She is the president of The Segullah Group—a nonprofit organization that produces personal writings for a variety of outlets. She is also a coordinator of the Gifts Outreach program, where resources relating to Down syndrome are heavily promoted, and she is a public speaker for the National Down Syndrome Congress and the Down Syndrome Association of Atlanta.   

Patricia E. Bauer is a journalist who has served as senior editor of the Los Angeles Times Sunday Magazine; special assistant to the publisher of the Washington Post; reporter and bureau chief at the Washington Post, and pundit on public affairs television in Los Angeles. Her articles have appeared in the Washington Post, the New York Times, and many other publications.

Bauer is a former member of an Institutional Review Board (IRB) at UCLA, where she participated in the ethical review of federally funded medical research on human subjects, and has addressed national and regional conferences on the rights of patients and people with disabilities. During the Carter years, she worked in the White House press office as editor of the White House News Summary.

She is a member of the President’s Leadership Council at Dartmouth College, the Pacific Council on International Policy, and the board of trustees of the Riverview School in East Sandwich, Massachusetts.

Bauer and her husband are among the founders of the Pathway Program at UCLA, a post-secondary program for young adults with intellectual disabilities. They are the parents of two young adults, one of whom has Down syndrome and is a survivor of leukemia.

Read an Excerpt

Excerpt from The Year My Son and I Were Born
Could I love such a son?
I rubbed my arms and legs with a rough washcloth, determined to scrub away not only blood and sweat and oil, but also doubt. Of course I could love Thomas. I already did. I loved him as I’d loved each of my new babies, with a primal strength full and fierce. . . .
Yet I knew the bond wouldn’t be enough, not for long. It was instinctual. Even animal. Thomas deserved human love, the delight and appreciation and tenderness one unique person feels for another. I’d never felt this for a person with Down syndrome or any other disability. I didn’t know if I could.
Goose bumps rose on my arms—the hot water was gone. And my time to indulge in weakness was gone. A child waited in a plastic box down the hall, and six more were waiting at home, waiting for security to surround them like a warm mantle, soft yet strong. Waiting for their mother.

Table of Contents

Prologue

Fall

Winter

Spring

Summer

Epilogue

Additional Resources

About the Author

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